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Selfless Abbi sets up fibromyalgia support group

 Published on: 4th March 2019   |   By: News Bulletin   |   Category: Uncategorized

A 17-year-old who has been living in constant pain for two years has set up a group for other sufferers of the condition which will hold regular meetings in Abbots Langley.

Abbi experienced severe pain in her hips when she was 15.

She explained: “I couldn’t walk, move, stand or sit without crying or wanting to cry from pain.”

When the pain only worsened, Abbi was sent to the Royal National Orthopaedic Hospital in Stanmore.

Abbi revealed: “I was discharged after 2 and a bit years with growing pains. I eventually started getting worse and my overall body pain saw me have months off school and work and left me feeling increasingly depressed.”

Last January, Abbi’s pain got so bad she needed help with everyday tasks including getting dressed, going upstairs, eating and moving in general.

She revealed: “My mum constantly took me to my GP, I used to go in five times a week just to log down my pain and to make them to realise it was not growing pains.

“My GP finally listened and sent me to a rheumatologist who tested me for loads of different things. She diagnosed me with fibromyalgia, hypermobility syndrome and other conditions. She was shocked about how many years I had struggled to be heard.”

Fibromyalgia is a severe chronic pain condition which has no cure nor known cause. Sufferers can describe their pain as being hit by a bus, being burned alive, stretched and hit with heavy weights constantly.

Abbi and her mum Sharon looked for support groups for fibromyalgia sufferers and when they were unable to find one decided to start their own. When they announced they were setting up a group on Facebook, they had 150 enquiries in 24 hours.

From March 6, the group will meet at Abbots Langley Scout Hut at the 5th North Watford Langleybury Scout, Upper Highway Abbots Langley. 

Face-to-face support will be once a month in the local scout hut in Abbots Langley.

Sharon said she hoped local people would back the group.

She commented: “With your support by sharing and donating to our cause and this group, we can support people by helping them understand an unknown invisible disability and condition but also to show they HAVE a voice and are NEVER alone even if they are suffering from similar conditions.

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