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Brave child meets royalty at special party 

 Published on: 10th January 2019   |   By: News Bulletin   |   Category: Uncategorized

A brave boy from Chalfont St Giles who suffers from a rare muscular condition met royalty at a special party in Clarence House last month.

Jasper Grannum, 12, who suffers from Duchenne muscular dystrophy, was invited to join Camilla, the Duchess of Cornwall, at a party organised by Helen & Douglas House, who care for local terminally ill children.

The 12-year-old was accompanied by his mum, Nicola, and his carer and Aunt Sandra Bradwell, and enjoyed a sausages and mash lunch made into smiley faces with Her Royal Highness, who made her way around the room to welcome the children and their families.

Jasper, who is a Chelsea FC fan, was diagnosed with Duchenne muscular dystrophy when he was two-years-old, and lost the ability to walk when he was 11.

His mum, Nicola, said: “He loves his sports and used to play football, but now he plays wheelchair football.

“Jasper has so much fun when he goes to stay at Helen & Douglas House and is very well cared for – the staff are amazing. It’s home-from-home.

“Everything at Clarence House was magical and the duchess was very warm and lovely.”

Helen & Douglas House cares for local terminally ill children and their families from Buckinghamshire and the surrounding counties.

The charity provides medical, emotional and practical support at the hospice in Oxford and at home, helping families deal with the implications of living with a child who will die prematurely so they can make the most of their time together.

The Duchess of Cornwall became Patron of Helen & Douglas House in 2007, and this was the ninth time that families supported by the charity, along with hospice staff, have been invited to Clarence House.

Clare Periton, Helen & Douglas House CEO, said: “For the children and their families and carers, this is always such a magical and special occasion.

“It is such a great privilege to have The Duchess of Cornwall as our patron and for us to be invited into her home.”

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