A Hemel Hempstead family whose daughter has a disease so rare it only affects 14 children in the UK are appealing for help from the community to find suitable land or location to build a specialist bungalow for their little girl.
Lexi Robins, one, suffers from Fibrodysplasia Ossificans Progressiva (FOP), which is caused by a single gene mutation and only affects around 70 people in the UK.
Lexi’s parents Alex and Dave Robins are on the hunt for a wheelchair friendly property, or a plot of land where they can build a bungalow suitable for their daughters condition and ensure she is in a safe environment at all times.
Lexi’s mum, Alex told HemelNews: “We are appealing for anyone who may have a suitable location to get in contact.
“Also, if any local businesses or schools are doing any charity events towards the end of the year, we would massively appreciate it you would consider choosing FOP Friends as your charity.”
Anyone who may have suitable, non-green belt land locally can get in contact with the family by searching ‘Lexi Robins’ on Facebook.