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RAISING AWARENESS: Mother from Pinner shares journey about daughters’ rare condition

 Published on: 5th October 2021   |   By: Lizzie Ellis   |   Category: Uncategorized

The mother of a young girl from Pinner with Spina bifida wants to raise awareness about the condition, and show other families that despite its challenges, babies who are diagnosed can still lead a happy healthy life.

Spina bifida is when a baby’s spine and spinal cord does not develop properly in the womb, causing a gap in the spine. In line with Spina bifida Awareness Week October 18 – 24, Laxmi Jeshani told MyLocalNews about her four-year-old daughter Tulsi’s journey.

Laxmi said: “I found out that Tulsi had it early on at my 20-week scan. She was born with the condition and has had the major operation twice. Doctors told me she would be paralysed from the waist down and would need to go to a SEN school, but my miracle baby is now four and can walk and is going to mainstream school.

“Despite Spina bifida, you can still have a remarkably healthy baby. In the beginning it is the scariest thing any parent could have to hear. There are things in life you have to go through sometimes and you overcome these situations and would do anything for your child. It definitely does get easier with time. Technology and medicine have really improved and helped children with this condition.”

For more information on Spina bifida visit www.shinecharity.org.uk

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1 Comment

  1. Laxmi Jeshani October 19th, 2021, 10:17 pm

    Thank you so much for sharing Tulsi story. She is definitely a miracle baby.

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