The mother of a child from Bushey who has relied on Nascot Lawn since she was just one says the decision of health bosses to withdraw funding from the respite care centre is devastating.
Bosses at Herts Valley Clinical Commissioning Group (CCG) made the decision to remove funding from the Watford based centre last month and enter into an agreement with Herts County Council and the county’s two other CCG’s to jointly fund overnight short breaks.
Satnam Kaur has been one of the leaders of a campaign to keep the much-valued facility open. Just a few months ago, she and other service users were celebrating after a decision to close the centre was quashed by the High Court.
Satnam told BusheyNews there were no words to describe how she and the other centre users were feeling.
She said: “Nascot Lawn should stay open indefinitely until a new decision has been made. But the CCG have ignored recommendations and gone ahead and cut the funding. This will trigger an automatic referral to the Secretary of State.”
Satnam revealed that the majority of children who use Nascot Lawn have now been left with no respite and revealed her daughter Gurpreet, who has a range of complex needs, is due to have major surgery in the next few weeks.
Satnam had chosen to send Gurpreet to a respite centre in Welwyn and had a home assessment at the end of March but since then the family have heard nothing.
She said: “We have had no care or transition plan put in place. She’s been offered a place at Nascot on a month by month basis. After surgery, she will be in hospital for a week then home for two weeks before she goes back to school. She will then be in plaster for ten weeks – how can they expect this? We just don’t know how families will cope .”
Picture courtesy of Hoss Photography